The Mystery Continues
As many of you know I have had an array of symptoms and have taken multiple trips to the hospital. I won't go into great detail-- read more about it all here. The symptoms that began in months ago are still there, and new issues have come up. One is this burning feeling that comes and goes in my face. There are certain areas were it feels as though a match has been lit, though that feeling doesn't last. I also have dull pain in areas, and sometimes a numbing feeling in one area of my face when I press on another. They still have no idea what the issue is, and I do have appointments with other specialists. Hopefully there are answers soon. The short answer to, "Are you feeling that now?" is: Yes, I feel some sort of pain, pins & needles, tingling, etc. all the time, even when I'm out and about and generally having a good time. Sometimes my heart will act up, sometimes it won't, but the aforementioned sensations are constant. Some days are worse than others. A common question I get is, "How do you deal with all that?" Well, here is how. There is no secret. You just suck it up and deal with it. Each day is taken one at a time, and I always think about how fortunate I am that things are being handled as best they can be for now. There are medications I take that help to take the edge off. Unfortunately there is no magic pill or device that can cure whatever this is... not until there is some concrete diagnosis anyway.
I see the judgment from people when I react a certain way or hold my face or other part of my body when it feels like it's on fire. I'm sure some people think it's being faked. If they want to trade places, I'd be more than happy to show them how real this is. Unfortunately, that is not a possibility. As there is no current diagnosis, there are times when I feel a bit hopeless and helpless. I never realized the power of proper diagnosis until now. If there was an answer, I may not like it, but all of this wouldn't be a mystery. The outcome would be known. Any treatment would be known. But it's all just a fog. Before you go judging others (and I know how difficult that is to do) remember that not all health issues are visible. Just because I'm not in a scooter or wheelchair, or have something visible, doesn't mean I don't have problems. The same goes for others. Since all of this, and knowing an increasing number of people with non-visible problems, I have become less judgmental.
Stay beautiful!
I see the judgment from people when I react a certain way or hold my face or other part of my body when it feels like it's on fire. I'm sure some people think it's being faked. If they want to trade places, I'd be more than happy to show them how real this is. Unfortunately, that is not a possibility. As there is no current diagnosis, there are times when I feel a bit hopeless and helpless. I never realized the power of proper diagnosis until now. If there was an answer, I may not like it, but all of this wouldn't be a mystery. The outcome would be known. Any treatment would be known. But it's all just a fog. Before you go judging others (and I know how difficult that is to do) remember that not all health issues are visible. Just because I'm not in a scooter or wheelchair, or have something visible, doesn't mean I don't have problems. The same goes for others. Since all of this, and knowing an increasing number of people with non-visible problems, I have become less judgmental.
Stay beautiful!